4 Financial Steps to Consider for Families of Children With Disabilities

Early planning can help ensure your child gets access to the resources they need.

Key Takeaways

  • Establishing a special needs trust can help you safeguard assets meant for your child without disqualifying them from governmental aid.
  • Creating an ABLE account can offer a tax-advantaged way to save for your child’s qualifying needs, like food, housing and legal fees.   
  • Having a Last Will and Testament can help ensure your assets are distributed according to your wishes, including naming the special needs trust as a beneficiary. 

For parents and guardians of children with disabilities, financial planning is an essential part of their care. While every family is different, here are four steps to consider as you put a plan in place that provides your child with access to resources and support throughout their life.

  1. 1
    Establish a Special Needs Trust and Choose a Trustee

    Well-meaning friends and relatives may wish to contribute to your child’s care, but it’s important to know that if he or she accumulates too many assets, it may jeopardize eligibility for certain governmental benefits. For example, if your child has more than $2,000 in assets, they could become ineligible for federal benefits such as Medicaid, Social Security and Supplemental Security Income.1

     

    Another factor to consider are life insurance payments, inheritance or financial gifts your child may receive by family or friends that could push their assets above $2,000. To avoid this, consider creating a special needs trust. You can name the trust as the beneficiary instead of your child, helping to preserve your child’s eligibility for federal aid. Assets in a special needs trust do not count against your child’s eligibility for public assistance benefits.

  2. 2
    Create an ABLE Account

    Similar to 529 education savings accounts, ABLE (Achieving a Better Life Experience) accounts provide a tax-advantaged way to invest towards the cost of care for your child with a qualifying disability, known as an Eligible Individual. ABLE accounts can be used for people whose qualifying disability began before the age of 26, and can be used to pay for costs relating to education, food, housing, assistive technology, legal fees and other expenses. The disability onset age will expand to 46 years old on January 1, 2026.2

     

    While contributions to an ABLE account are not eligible for a federal income tax deduction, the earnings within an ABLE account can potentially grow on a tax deferred basis. In addition, distributions of earnings are not taxed if the money is used for the Eligible Individual’s qualified disability expenses.

     

    For 2025, you can contribute up to $19,000 to an Eligible Individual’s ABLE account. It’s important to note that assets in an ABLE account generally do not affect your child’s eligibility for Social Security benefits, unless the ABLE account balance exceeds $100,000.3

  3. 3
    Designate a Guardian

    While it might be tough to imagine a day when you are no longer your child’s guardian, appointing someone to step into that role should you pass away, or otherwise become unable to manage the responsibility, can provide an important layer of protection. This is, of course, a major decision and you should ensure that the person you choose is fully informed about your child’s unique circumstances and ready to take on everything the role entails.

     

    One way to help set your designated guardian up for success is creating a letter of intent that outlines your child’s current medications, doctors, therapists, likes and dislikes. While this is not a formal legal document, having a record of your child’s needs can help their guardian transition into the role. 

  4. 4
    Draft a Last Will and Testament (a “Will”)

    Most people need a Will, but it becomes an even higher priority if you have a family member with disabilities. Anything can happen at any time, and a will documents your final wishes and outlines how your assets will be distributed after you pass away. You will have an opportunity to name a guardian for any minor child in your Will. An estate attorney has the specialized skills to help you draft a Will.

     

    In addition, if you do not have a Will before passing, the division of your assets may be left to probate courts. In this case, a probate judge could allocate more than $2,000 worth of assets to your child, which may disqualify your child from federal aid. 

Working With a Financial Advisor

Making decisions to help ensure your child has a financially secure future can be emotionally and financially challenging. Fortunately, you don’t have to navigate it alone. A Morgan Stanley Financial Advisor who specializes in special needs planning can offer guidance and suggestions on the steps you can take to help meet your goals.

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